The dessert harvest can take several weeks to work and for some. is part of Johnson & Johnson & they keep asking the FDA NOT to allow a generic & FDA complies. Elmiron stops working while on antibiotics? I know the price of Elmiron is insane. I have been having regular eye examinations yearly. These cookies do not store any personal information. The main natural alternatives to statins to lower cholesterol include diet changes, increasing your physical activity level, and trying natural supplements. The Mayo Clinic lists a number of Elmiron alternative oral medications for potential treatment of interstitial cystitis, including: Nonsteroidal anti-inflammatory medications this class of medications include common pain relievers like ibuprofen (Advil or Motrin) and naproxen sodium (Aleve) Anyway, I started with Dessert Harvest 3 pills 2x day and the doctor gave me a prescription for Elmiron to be take 3 x a day. If you have found Elmiron helpful in reducing your symptoms, your first option is bladder instillations that would provide a similar coating effect (i.e. Pregnancy Safety Animal studies didn . Is pain that bad without surgery or even a pill? Please click the button below for a Free Consultation or call us toll-free 24 hrs/day for legal advice by dialing (866) 588-0600. Iam limited with instillations because Im allergic to lidocaine. You also have the option to opt-out of these cookies. There are various oral medications, alternative therapies, and surgeries you can try instead of Elmiron. During TENS, mild electrical pulses increase blood flow, relieve pain in the pelvic region, and reduce urinary frequency. Our lawyers and attorneys also focus on handling lawsuits in the following cities: New York, Los Angeles, Chicago, Houston, Phoenix, Philadelphia, San Antonio, San Diego, Dallas, San Jose City, Detroit, Jacksonville, Indianapolis, San Francisco, Columbus, Austin, Memphis, Fort Worth, Baltimore, Charlotte, Boston, Seattle, Washington, Milwaukee, Denver, Louisville, Las Vegas, Nashville, Oklahoma City, Portland, Tucson, Albuquerque, Atlanta, Long Beach, Fresno, Sacramento, Mesa, Kansas City, Cleveland, Virginia Beach, Omaha, Miami, Oakland, Tulsa, Honolulu, Minneapolis, Colorado Springs, Arlington and Wichita. Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. I had a bladder reaction to aloe vera capsules. Once we meet our insurance decductable, I only have to pay 10%. The generic names of all ACE inhibitors . I see that Elmiron may have risks to vision. Several oral medications can potentially help with treating interstitial cystitis, such as: Apart from prescription medication, other therapies can be used as Elmiron alternatives, such as: In general, oral medication is more effective than therapies. Even more popular is a remedy from our resident expert, Ted from Bangkok, who proposes a slate of herbal remedies and complementary medicine therapies to improve lung function and perhaps reduce scar . Do you all ever tried to ask any alter, https://www.amazon.com/CystoProtek-Official-USA-Distributor/dp/B06XC1MP4X/ref=sr_1_1?keywords=Cystoprotek&qid=1555635843&s=gateway&sr=8-1. Will stick to Elmiron. The Best Natural Anavar Alternative is Anvarol. I haven't found the aloe pills to help with my urgency/frequency but it does help some people. To date, it is the only FDA-approved medication for treating interstitial cystitis. What is the lowest does of Elmiron anyone is having success with? This one is an inquiry for my mom. Adopting a low-oxalate, low-histamine, and/or low-lectin diet. Its also important to consult a lawyer if youre diagnosed with retinal damage from taking Elmiron. Onion & Garlic Spray. It took a few months before I started seeing improvements but after about 4-5 months I was a lot better. At this time, there is no generic form of Elmiron available in the US. If youve been using Elmiron to treat IC, you should consider switching to an alternative. . This is the only drug approved by the FDA for treating. You might try Cystoprotek. Have you tried it? farr38582 I had too many side effects to keep taking it. A lawyer can help you get damages that may make living with an eye condition easier. I still get some occasional pain but I can manage it with CBD oil or CBD ointment. Usually, people who have severe pain in the bladder wall and can only hold very small amounts of urine are surgery candidates. Elmiron is supplied in white opaque hard gelatin capsules containing 100 mg pentosan polysulfate sodium, microcrystalline cellulose, and magnesium stearate. I have been off Elmiron for 9 months, and the retinal damage continues. One study proved that Elmiron caused eye damage in a quarter of studied patients [2]. 40 aluminum lake, FD&C Blue No. 3 Health Benefits of Quercetin Caveats CTRL + SPACE for auto-complete. This is the second time its happened to mejust wondering if Macrobid somehow cancels out or reduces the effectiveness of Elmiron ? Halotherapy for Interstitial Lung Disease. Elmiron is a brand name for an anticoagulant drug that is classified as a low molecular weight heparin. Sarah began practice initially as an insurance defense attorney, and has been representing plaintiffs since 1990. Plant oils. Natural Remedies for Idiopathic Pulmonary Fibrosis Treatment Hydrogen Peroxide Inhalation is yet again a popular home remedy for lung diseases of various kinds, as here for pulmonary fibrosis. Antihistamines. One study proved that Elmiron caused eye damage in a quarter of studied patients, What to Do if You Have Eye Damage Because of Using Elmiron. Elmiron is manufactured by Janssen Pharmaceuticals, a subsidiary of Johnson & Johnson. https://www.amazon.com/CystoProtek-Official-USA-Distributor/dp/B06XC1MP4X/ref=sr_1_1?keywords=Cystoprotek&qid=1555635843&s=gateway&sr=8-1. This category only includes cookies that ensures basic functionalities and security features of the website. Tagged: Zantac One of the many difficulties posed by this past year has been the number of drug recalls. Some people have seen improvement in a short amount of time. Elmiron is especially dangerous for the retina and can cause macular degeneration. Unfortunately, there is currently no generic version of Elmiron available in the United States. However, there are some online pharmacies that claim to have generic Elmiron. Are IVC Filters dangerous? Wondering did anyone takes more elmiron that the 100mg 3x a day? Other dangerous side effects include: These conditions can have consequences such as: I mentioned that Elmiron is the only FDA-approved medication for IC, which means theres no generic alternative for Elmiron. 2 aluminum lake, FD&C Red No. Katrina. I hope it works. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Your Injury:Bladder SlingGadolinium (MRI)Hernia MeshIVC filterNuVasive MAGECParagardStryker HipSurgical StaplerTransvaginal Mesh------AbilifyActosAduhelmBelviqCymbaltaEffexorElmironEssureGranufloDepakoteGeodonInvegaInvokanaLyricaNexiumOpioidsParaquatRisperdalRoundupTestosterone therapyTalcum PowderTaxotereXareltoZantacZofranZoloftZinbryta, State:AL AlabamaAK AlaskaAZ ArizonaAR ArkansasCA CaliforniaCO ColoradoCT ConnecticutDE DelawareFL FloridaGA GeorgiaHI HawaiiID IdahoIL IllinoisIN IndianaIA IowaKS KansasKY KentuckyLA LouisianaME MaineMD MarylandMA MassachusettsMI MichiganMN MinnesotaMS MississippiMO MissouriMT MontanaNE NebraskaNV NevadaNH New HampshireNJ New JerseyNM New MexicoNY New YorkNC North CarolinaND North DakotaOH OhioOK OklahomaOR OregonPA PennsylvaniaRI Rhode IslandSC South CarolinaSD South DakotaTN TennesseeTX TexasUT UtahVT VermontVA VirginiaWA WashingtonWV West VirginiaWI WisconsinWY WyomingOther. IC is bladder inflammation or irritation. I stack 2 wedge pillows which helps but does not eliminate the pain. However, more evidence is still needed to support this claim. You could take evening primrose oil in tea form. Alternative Therapies For Alzheimer's Disease. I know pretty fast if my stomach will accept something. Maculopathy is a progressive disease of the macula, the central area of the retina. The things out there that work similar to Elmiron are all alternatives. Therefore, it is best to steer clear of these virtual drug stores, as they may be selling a medication thats not cleared by the U.S. Food and Drug Administration (FDA). What Elmiron Alternative Should You Take? 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Would love to hear from everyone who has eye issues from Elmiron. How long have you. Studies linking Elmiron to several visual side effects had its users looking for other options. Native to northern Mexico and the southwestern United States, candelilla wax is an affordable lubricant used in varnishes, lip balms, and lotion bars. I was later placed on hydroxizine as well because in the spring and fall when pollen is high I had flares. Soap, Orange Citrus Oil, & Water. Ancient Indians highly revered neem oil as a powerful, all-natural plant for warding off pests. They remove the substance that causes GI issues. Apprehensive about Staring Elmiron again IC no elmiron for a yr no urologist. DID find it hard to take 3 a day, because of time frames you must observe around eating. Woman nearly went to jail over chilbirth debt, Elder care with dementia: Elder care decisions, Nystagmus eye: Eye disease with severe headache. The fastest way to get rid of cystitis is by using antibiotics. Medications like imipramine or amitriptyline can reduce pain in the bladder and make IC easier to manage. There are 40 synonyms listed for pentosan polysulfate on PubChem including BAY-946, HOE-946, pentosan sulfuric polyester, polypentose sulfate, polysulfated xylan, PZ-68, SP-54, xylan SP54 and xylan sulfate. These cookies will be stored in your browser only with your consent. I have an HS. Baking soda can also lower the risk of UTIs. I took it last winter for one month, I paid $60(which I thought was a lot at the timesilly me). After about a year I began having burning pain in my abdomen (I think its in my stomach but can't be sure) every night 3-4 hours after I lie down. 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This method isnt used very often because it can lead to several complications. Diet changes. Despite being a controversial drug, Elmiron is widely prescribed in the United States. This unusual fruit is an effective natural remedy to prevent and relieve interstitial cystitis, as well as urinary infections in general. An alternative type of blood pressure medication to an ARB are angiotensin-converting-enzyme (ACE) inhibitors. My friend told me that CystoProtek helped him a lot and he advised to other people with similar problems to try it. ACE inhibitors work by dilating or enlarging the blood vessels, which causes blood pressure to decrease. I am panicking a little bit. Having, Elmiron on Medicare Part D - cost & supply limitations. Evening primrose oil is also available in capsules. If you are concerned about any side effects or symptoms while taking Elmiron, consult with your doctor. Pentosan polysulfate sodium (PPS), the active ingredient in Elmiron, is believed to be responsible for the retinal damage in patients who use the drug. After my diagnosis I spent 1.5 years trying many treatments to ease my pain, none of which offered much relief. Necessary cookies are absolutely essential for the website to function properly. Kava is also an effective herbal treatment for anxiety and insomnia. The only FDA-approved medication for treating interstitial cystitis is Elmiron [1]. Elmiron is most commonly used to treat interstitial cystitis. Quercetin has also been studied for men with chronic pelvic pain or prostatitis (inflammation of the prostate). I have been taking it for 12 years. Get emergency medical help if you have signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat. Baking soda (sodium bicarbonate) is another effective remedy for an inflamed bladder. Natural therapies such as a soy supplement can help restore balance to the body and therefore decrease symptoms of interstitial cystitis. Need a med to help IC, cant take Elmiron anymore New to Group and weaning off of Elmiron after 16 years Has anyone recovered from the eye damage done by Elmiron? Saturated fat is primarily found in animal products like meat and full-fat dairy. Pentosan polysulfate sodium (Elmiron), which is approved by the Food and Drug Administration specifically for treating interstitial cystitis. Sustainably-harvested carnauba wax. For the past 6 months I haven't had to take any prescription pain meds. Additional natural strategies for interstitial cystitis (IC)/bladder pain syndrome (BPS) . Some of the visual symptoms of Elmiron maculopathy include: Unfortunately, doctors often misdiagnose this unique type of maculopathy for other eye conditions such as pattern dystrophy and age-related macular degeneration. The solution is held for varying periods of time, from a few seconds to 20 minutes (known as . Anvarol is an all-natural alternative to the steroid Anavar, while it may take a bit longer to work, the results are similar. Mineral Oil. 1 Elmiron (generic name: pentosan polysulfate sodium) is a prescription drug used to treat a disease called interstitial cystitis (IC). In light of these known side effects, its no wonder IC patients like you may start looking for some Elmiron alternatives. ELMIRON was evaluated in two clinical trials for the relief of pain in patients with chronic interstitial cystitis (IC). Some of these herbal remedies could interact with your prescription medication, which could cause additional health issues and make your IC worse. The only FDA-approved medication for treating interstitial cystitis is Elmiron. You should consult your doctor if you have eye damage because of using Elmiron, even if you arent experiencing any major side effects. The things that aren't are rescue instillations that include heparin or a newer med that usually is harder to get than Elmiron. But opting out of some of these cookies may affect your browsing experience. Contact us for a free consultation today. Erica is our staff writer and oversees the overall content on Drugwatcher. Their quality of life, research suggests, resembles that of a person on kidney dialysis or suffering from chronic cancer pain. Blog Salt Spray. I stopped the Elmiron 10 years ago but I watched my diet faithfully. I would like to know if there is some good alternative for Elmirone. Cases of pigmentary maculopathy have been reported with long-term use of ELMIRON. The patients in the study received a standard dosage of Elmiron for a duration of up to 15 years. Take Elmiron (pentosan) 3 times per day with water on an empty stomach. These therapies may include diet and exercise, bladder training, and bowel training. You may be entitled to recover compensation and our legal team can help. Home / Elmiron Lawsuit / Elmiron Alternatives: Medications and Therapies, September 22, 2021/ Erica Davies / Elmiron Lawsuit / 0 comments. Have been on Elmiron for a couple years, I am getting real bad dizzy spells ,and vision blurry .trying to find alternative to Elmiron ,because the pain before it was unbearable. If you live in the New York area, you could learn more about recent New York law case investigations spurred by Elmiron. That's for the first time in 24 years! I tried the Desert Harvest. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. Alot of the foods we eat has alot of histamine. If you want to get notified by every reply to your post, please register. This info can help you choose the best drug alternatives and give you insight into the next steps to take if you need to file a lawsuit against Elmiron maker so you can receive a fair settlement for your injuries and pain. 2022 Drugwatcher.org | All rights reserved. A new study published in the Journal of the American Medical Association (JAMA) in its July 9, 2020 issue reports that patients must be made aware of the potential long-term risks of Elmiron side effects. What to Take Instead of Elmiron According to the Mayo Clinic, there are several alternative drugs you could take orally to treat interstitial cystitis. I will have to get strict with my diet and am looking into LDN or Low Dose Naltrexone. However, most medications work well with natural remedies to help you craft a personalized long-term plan for IC care. They can take a while to work but it depends on the person. What Is the Criteria For Filing an Elmiron Lawsuit? It's just about to become available in the UK. Clinical efficacy of 1-year intensive systematic dietary manipulation as complementary and alternative medicine therapies on female patients with interstitial cystitis/bladder pain syndrome. Unfortunately, many uncertified vendors, both in brick-and-mortar and online pharmacies, claim to sell approved Elmiron alternatives. Elmiron is similar to a group of drugs called low molecular weight heparins, which help prevent irritation of the bladder walls. I recently started to see a retina specialist who has seen some thing on the macular in one eye, I've had the same Medicare Part D plan 2 yrs in a row -- my 4th or 5th plan. Intended to stick with it because I like Walgreens, its preferred pharmacy Just found out Elmiron is Tier 4 drug (think it was 3 this yr) & all tier 4 drugs can be gotten only in monthly supplies (been getting 3 month supply). Interstitial cystitis (IC) is a painful bladder syndrome that causes bladder pressure, pelvic pain, and problems with urinating. The bladder medication has long been caught up in issues of potentially causing vision problems in some patients. Halotherapy is a treatment done using salt (sodium chloride) as the primary medicine. Sarah Showard graduated from the University of Maryland in 1985, Magna Cum Laude with a Bachelor of Arts in English-Linguistics and a Certification in Women's Studies. Researchers found that Elmiron users who took the drug for an extended period of time had the worst eye damage. Find other members in this community to connect with. I was diagnosed right away and put on Elmiron and had the bladder expansion surgery. If youve been looking for some alternatives to Elmiron, you may have come across online pharmacies that claim to have generic versions of the drug. It relieved my IC symptoms. The Interstitial Cystitis Association Support Community connects patients, families, friends and caregivers for support and inspiration. If the doctor diagnoses you with eye damage, you have ground for a lawsuit. Uva-ursi extract and ibuprofen as alternative treatments of adult female urinary tract infection (ATAFUTI): Study . Does anybody worry about the risks of Elmiron to vision? Isatis (indoline) - 6 to 9 capsules daily. It is important to work directly with your doctor in looking for alternative treatments if youre trying to avoid the potential eye damage caused by Elmiron. What are cheaper but successful alternatives? Most Common Side Effects Hair loss, nausea, diarrhea, headache, blood in the stool, rash, abnormal liver function tests, upset stomach, bruising and dizziness. It will also help increase energy for more intense workouts. It can be challenging to adjust to a life without the pleasures of wine, coffee, tomato . The sooner you contact us, the better your chances of getting damages. Studies have also reported numerous symptoms of vision loss related to the bladder drug. Child Spanking Debate: Finding Alternatives to Spanking, 'We Evolve And Improve': One Child Immigrant's Experiences With Starting School In A New Language. Elmiron is used to treat interstitial cystitis. Does anybody worry about this? We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. How long can a depression last? I am in tremendous pain. Everybody's pain level is different. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis. Some studies suggest that the eye damage potentially caused by Elmiron can continue to progress even after years of quitting the medicine. Weve dealt with countless cases where people experienced the health consequences of using dangerous medication. Although most of these cases occurred after 3 years of use or longer, cases have been seen with a shorter duration . Thats not the case. I have taken 300 mg daily of Elmiron for 8 years. Listed below are some Elmiron alternatives for the potential treatment of interstitial cystitis: Oral Medications Nonsteroidal anti-inflammatory drugs. But again, UTI symptoms. Reply Share React sally46 Apr 14, 2019 4:28 PM Was diagnosed with IC 2010. Even with the discount coupons like GOOD RX?? Maca. Here are some suggestions for what you can take instead of Elmiron if you need to continue treating your IC without worry about how Elmiron will affect you. Medicines to avoid in pregnancy However, that information will still be included in details such as numbers of replies. Finally had Pelvic Floor Prolapse surgery in July, thinking this would cure the problem. She is now able to get by with just one elmiron a day and ups it during times she has a terrible flare. What Is Dialectical Behavior Therapy, And Would You Benefit? If you or a loved one developed any eye problems or symptoms after taking Elmiron for interstitial cystitis, you can contact us today and we will assist you with the necessary steps in pursuing legal action. Choose an allergy medicine with loratadine to prevent frequent urination and discomfort from IC. Elmiron is indicated for the treatment of bladder pain syndrome characterized by either glomerulations or Hunner's lesions in adults with moderate to severe pain, urgency and frequency of micturition. By holding the drugs manufacturer accountable, youre not only fighting for your rights. Here's What You Need To Know. I could live with a little hair loss but I am not willing to lose my eyesight. If you want more information can google it. If you normally take medications for seasonal allergies, you may notice that your IC is more manageable when you are taking antihistamines. As a result, the bladder gets protected from irritating substances in the urine. Listed below are some Elmiron alternatives for the potential treatment of interstitial cystitis: In some cases, your doctor may also recommend standard physical therapy to help with muscle tension caused by your bladder pain syndrome. Hello everyone, I started it and within 2 weeks my symptoms were gone. I have a question about Elmiron and mixing with DH. It turned out that I had kidney stones - a big surprise to me, revealed in CT scans. Another option provided for patients who believe they were injured by Elmiron is to file an Elmiron lawsuit. New Jersey Plaintiffs Request For Elmiron Multicounty Litigation. These medicines include: NSAIDs. The drug was approved by the Food and Drug Administration in 1996 for the treatment of . Evening primrose, a North American plant, helps to relieve bladder inflammation. If you want more information can google it. What is a good substitute for beeswax? Interstitial cystitis support group and discussion community. Write CSS OR LESS and hit save. Ginger: a 2009 stud y found that ginger was effective as ibuprofen for pain symptoms . Recent studies showed that Elmiron has a range of side effects associated with eyes and vision. If you have been prescribed Elmiron and experienced negative side effects, you could ask your doctor for alternative medication that can effectively treat interstitial cystitis (IC). from chemical injury, estrogen atrophy etc.). Elmiron can cause a series of eye issues, such as a damaged retina. Basing on the kind of flare, cold may be more effective, or heat, or even a mixture of both. Bladder Instillations. By clicking Accept, you consent to the use of ALL the cookies. This is even more important if you've been using this medication for a long time. This is the only drug approved by the FDA for treating interstitial cystitis. The Medicare web site changed totally & it's really hard to look up drugs & I can't FIND, Hello all!I was diagnosed with IC 9 years ago after a long and painful journey through the medical system. You should consult a lawyer if youve been diagnosed with eye vision problems after taking Elmiron. Yes, doctors are still recommending Elmiron. Half Life The half-life of a drug is the time taken for the plasma concentration of a drug to reduce to half its original value. According to the journal Urology, the root extract contains macamides and . Drinking the tea in the evenings can relax both the body and mind so you can get a good nights sleep. This website uses cookies to improve your experience while you navigate through the website. To make sure your stomach is empty, take the medication 1 hour before or 2 hours after meals. Copyright 2021 Schmidt & Clark, LLP. My doctor just prescribed it for me but she told me that the only side effect was hair loss. I have been on it for 15 years. The natural treatment has helped ,but for me the introduction of elmiron was a big step in my recovery. Elmiron Alternative for Interstitial Cystitis Treatment. One blinded, randomized, placebo controlled study evaluated 151 patients (145 women, 5 men, 1 unknown) with a mean Bayberry wax. Azahar (fr, My urologist is thinking that IC is whats causing my pain and problems. How long after stopping Elmiron do you usually see symptoms return? Hi, my friend is suffering from cystitis for some time and her doctor suggested her to take Elmiron. Elmiron (pentosan polysulfate sodium) belongs to a family of anticoagulant drugs known as low molecular-weight heparins. What should farmers use instead of pesticides? I dont want to stop taking the medicine so soon but at this point I may have to. Synthetic beeswax. These drugs are often used to relieve pain and can be purchased at your local grocery store. . It might take 3 to 6 months for you to see any improvement in your bladder symptoms. Never avoid, disregard or delay seeking professional medical advice, or change any . Since the report was published, several subsequent studies regarding eye problems and vision loss linked to Elmiron continued to surface. Experienced no side effects with Elmiron. The third natural remedy to relieve interstitial cystitis is the bearberry or ursi grape. over a year ago, osmund42432 Hi everyone. My IC pain is strictly in my urethra ( feels like I have a knife in the urethra), I have been doing great for a few years. If you are considering any of these medications, be sure to speak with your physician about any natural treatments you may want to try for IC. Interstitial cystitis is a condition that causes pain in the bladder and pelvic pain, and urinary urgency. What is Elmiron? Elmiron is a popular pharmaceutical drug used to treat IC. They are effective in treating mild cystitis cases, and the pain usually disappears after three days. Have you tried it? It has gotten progressively, I am a new member. . ELMIRON is the drug used to treat IC. I also use Desert Harvest aloe vera and amitriptyline-25 mg. This eye condition could potentially lead to blindness, and there are no cures. Sometimes, heat or cold therapy is considered the most efficient remedy to help relieve the pain associated with a cystitis flare[1]. I was diagnosed with IC in 2001 and after having several unsuccessful DMSO treatments and living through constant pain and burning for 4 months I found a urologist who developed Elmiron. Antihistamines. Antihistamines. This can be anything from tricyclic antidepressants and sacral nerve stimulation to surgery in some cases. Found out after I had a child; allergic to ELMIRON so had to stop taking it. Common over-the-counter nonsteroidal anti-inflammatory medications include ibuprofen (Advil or Motrin) and naproxen sodium (Aleve). One of the most recent research from 2020 suggests that Elmiron patients may continue to suffer from pigmentary maculopathy long after stopping the medication. However, as mentioned, a generic alternative to Elmiron is yet to be available in the US. The most common side effects of Elmiron are hair loss, diarrhea and nausea. A medical professional can help you choose which alternative will relieve bladder inflammation most effectively for you. 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